DEAR DIALYSIS....

Dear Dialysis.....

 

 

Yes, it's me again..... We all know tomorow is a very big critical day.... I'm not the only one counting on you.....I know there are at least 2 others.  You do know you are a lifesaver, yet you are exhausting!  When I finally got to talk to my daddy today, his voice was ever so soft, ( i can always tell when his voice is weak,) you mean well, yet you take everything out of him.  In fact, you take just about everything out of both of them. 

 

I'm finally getting a better understanding of exactly how you work.  Manual exchanges are so time consuming, and well... extremely picky!  I'm going with my mom's interpertation..."amazing how God designed our body, He just knew.  It makes no sense that this manual exchange happens so naturally without needles, without electricity, it's beyond words."  Yet 2 weeks of manual exchanges feels like 2 years!   You have very high expectations, you are pretty demanding, and maybe its fair to say you are totally like OCD!

 

You want your work surface cleaned with bleach/water, get the bag of solution, your masks, sanitizer, paper towels, your stay safe organizer, heparin and syringe. 

 

Masks on, door closed, windows and vents shut off, no pets, check the bag for no holes,  wash hands, open the bag,  sanitize hands again,  place this cap and clamp that off, turn the blue dial slowly, go ahead and fill, then drain, and resanitize hands, put your gloves back on, unscrew protective cover,   do this and this and this.... also check drain bag for clarity , drain the weigh bag,  eventually flush it.... and as i  think about it , i have skipped around on your expectatins and requirements and tried to make it as simple as i can. By now, I am kinda exhausted!.  This ordeal has my daddy on very strick schedule.

 

So, its 1;15 am, i just cant sleep, you have me somewhat uptight and nervous, i never knew you could be so time consuming and techinical.  I know infection is the ultimate... no getting infection, no fever, or redness, no cough or common cold, your demands you see are very HIGH!  But I would expect no less when it comes to expectations and my daddy! He means the world to me, and because of you, he gets another day in this wondeful life, he deserves it you know, he has given and given without hesitation, without questioning" why me".... actually his outlook is "why not me?".. so please, be kind and cooperative with them both tomorow, as they show their courage, braveness, their ability and knowledge and understanding  to Dr. Woody.  As long as she feels they have the hang of this manual exchanges and its working well, she hopes to give them the ok to start with the night time dialysis.  Mr. Weather-man.... do you mind cooperatating tomorow, no snow, no ice,no closing the schools, otherwise, he  will not be able to show Dr. Woody his capabilities, and wont get the green light to have a nurse stay with them all night while starting a whole new phase of dialysis.  So, please, can you wait till friday for this storm  to come in....we would all aprreciate it

 

 

 

and lastly dear dialysis..... please dont take this all wrong....i'm not complaining, i am grateful for you, i just want my daddys 2013 word of "HEALTH"  to come thru for him... so many people are counting on you....P.S......you do know nae and I are a  match, we both have negative O blood type, just what type my daddy is.... we have both tried to give him the gift of more life...just let one of us be a living kidney donor....please.....am i asking too much? just consider it ok?

 

 

 

So, i am going to close with last few words.....

 

Please Dialysis.... please step up to the plate and follow right along with my daddy as he has to prove to his kidney Doctor ( yes the pretty one) that he and my mom are compleltey ready to stop the manual exchanges, and graduate to the next best thing.... night time dialysis!  Iv'e heard nothing but positive things about you, how much freedom you will bring to my momma and daddy.... they will no longer have to do these 32 steps day in and day out ( 4 times a day).  They say you are a cake walk compared to the manual exchange... I hope so... I know you know that they need a break, some time for themselves.  I am grateful for you, the alternative is not great... so that I thank you for.  I never knew 2 more braver and courageous people..... how can that be? how did I not know this about my own parents?  Not only you dear dialysis, but the faith they both have in God, and not just their faith in God, but faith in God's timing also. 

 

because of His  AMAZING GRACE.......